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Wednesday, 6 November 2019

Endometriosis.


This post is going to be heavy one, so if you want an easier understanding of what I'm about to write, I have also filmed a YouTube video about it which you can find at the end of this post.

So grab a cup of coffee, tea, wine, tequila, whatever tickles your fancy and let me just get into it.

Endometriosis.

The first time the doctor said that I might have endometriosis, I just wanted to cry. I remember being silent in the car on the way home with my boyfriend because he didn't quite understand what it was. When I got home I phoned my mum and burst into tears.

"They think it's endometriosis." "What if I can never have kids?" "I have to have an operation."

I'd heard of endometriosis quite a few times through general research, however didn't know the full facts about the condition. All I knew at that point in time is that it is a chronic illness with no cure that can affect your fertility. 

My symptoms started in December 2018. It all began with pelvic pains which felt like period pains when I wasn't on my period. I was sent for an ultrasound which came back all clear so I thought it was just something of nothing. 

Fast forward 2 months to February 2019, the pains were still there and getting worse, so I was sent for another ultrasound which again, came back all clear. A few weeks after my second ultrasound, I also started to experience bleeding in-between periods and I was also starting to find intercourse with my boyfriend extremely uncomfortable and painful - so back to the doctors I went. 

I was referred by a GP to a private hospital to speak to a specialist gynaecologist. The doctor I saw explained how she suspects that it might be endometriosis and that having a laparoscopy (keyhole surgery) will be the only way to determine if it is or not. 

I have a whole rant about how I was messed around and sent from hospital to hospital, however I'm not going to include that in this post, but I do speak about it in my video. Finally, in July 2019 I went for my operation and was diagnosed with endometriosis. 

Not being able to have children is my second biggest fear in life (death is my first if you were wondering, lol.) From the start of this year I have gone through constant worrying that my fear might come true, but in my case I have been fairly lucky as the doctor said that he checked my ovaries and they were producing eggs as normal and there wasn't enough scar tissue to cause any concern towards infertility. Pheeeeew!

During a laparoscopy, if the surgeon finds endometrial tissue, they can usually remove it there and then. In my case, the endometriosis had started growing on part of my artery, therefore the surgeon could not cut the cells away due to the risk of the operation being too high in case they accidentally pierced the artery. 

This means that I will always have endometriosis present in my body. The complication with endometriosis is that it can multiply and spread to other parts of the reproductive system, therefore throughout my life I will have to go for more laparoscopy's to make sure it isn't affecting my fertility. Along with this, I will also always suffer with the symptoms of the condition such as severe pain. It has been 4 months since my operation and the symptoms are nowhere as bad as they were, but they are still present and still affecting parts of my life. What nobody speaks about with endometriosis is the mental effect it can have on you. I now subconsciously associate intercourse with pain, which you don't need to be a psychologist to realise that would make it less enjoyable for me and make it extremely hard for me to "get in the mood." This then has an effect on my relationship. Along with this, I can never be 100% certain if I am ever going to be able to have kids because yes, at this moment in time my endometriosis isn't at the stage where it will affect my fertility, however as I will always have the condition, I am unaware of the rate it may grow. The only way I can be sure is to have an operation, and that in itself is an experience I don't really want to have to go through for the rest of my life.

Going on the combined hormone pill can actually slow the process of endometrial cell division, so I have been prescribed by my doctor to go back on the pill after I made a decision to come off the pill completely a few months ago.

I decided to film my experience and put it into a YouTube video so that if anyone else is going through the same thing then they can have a no bullsh*t view on what it's like, from the emotional side to the physical pain. Like I said before, my endometriosis hasn't fully gone and it will be a condition which I have to live with for the rest of my life, but I'm grateful that I stuck to my guns and kept asking to be seen by the doctor time and time again despite being told that nothing was wrong with me. 

Nobody knows your own body like you do, so if you know that something isn't right demand to be seen until you get to the bottom of the problem. 




2 comments

  1. I feel like so little is taught about endometriosis even though it is quite a common condition. Like some doctors dismiss you when you say you have the symptoms. It sounds really frustrating in your case that you were pushed from pillar to post.

    I'm glad you managed to get diagnosed though, as now at least they can monitor the condition and hopefully minimise its effect!

    Sarah xo Oomph London

    ReplyDelete
    Replies
    1. 100%, I think its a condition which needs to be spoken about more! Thank you lovely! xx

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